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  • Freedom – A Couple of Days Late

    Originally published on July 6, 2013

    The stars and stripes, the red, white and blue.  Makes me think of freedom.  Makes me contemplate not only the freedoms we enjoy in our country, but the freedom I have in Christ.  And as is often the case, my thoughts turned to Shelby.  In many ways, she is held prisoner by Dravet Syndrome.  Trapped in a body that doesn’t work right – a sweet, but simple mind.  So what freedoms is she afforded?  What does freedom mean for my little girl?
    1.  Shelby is free from the consequences of sin and death.  Let me express right off the bat, that I realize what I am saying here is a very controversial view point.  But I’m going there anyway.  You won’t find the words “age of accountability” anywhere in the Bible, but I believe the scriptures speak to the concept.  Romans 6:23 says, “For the wages of sin is death, but the girft of God is eternal life in Christ Jesus our Lord.”  All who sin must suffer eternal death separated from God.  But because God loves us, He sent His Son Jesus – the gift mentioned above.  Jesus was without sin, yet He died for all of us.  His death paid the price for our sins.  If we believe this and trust our life to Him, Jesus covers that debt of death so that when we pass from this life, we go on to life eternal with God in heaven.  Shelby has no way to understand this.  She never will.  She is the developmental age of 21 months and that has not changed in years.  Because of this lack of understanding, Shelby is incapable of sin.  When she is doing something wrong, I can tell her “no” and she understands that I mean to stop.  But she does not have the comprehension to understand from day to day that the action is wrong.  She will try it again.  Because of this lack of willful sin, I believe Shelby is closer to God than I will ever be this side of heaven.  And I believe scripture backs me up.  In Matthew 18:3, Jesus says, “Truly I say to you, unless you are converted and become like children, you will not enter the kingdom of heaven.  Whoever humbles himself as this child, he is the greatest in the kingdom of heaven.”  In Mark 10:14 Jesus says, “Permit the children to come to Me; do not hinder them; for the kingdom of God belongs to such as these.”  When we trust God to forgive us of our sins, we become pure of heart again – like a child.  Shelby is already pure of heart.  So I rest assured that she will be with me in heaven one day.  I treasure Shelby’s innocense and look forward to the day when I will be wholly like her again.  If you don’t agree with my interpretation of scripture on this, that’s ok with me.  Just don’t tell me about it.
    2.  When Shelby reaches the pearly gates one day, she will experience the physical freedom that she doesn’t have here on this broken planet.  She will never have another seizure.  She will be able to praise God in songs and full sentences.  She will run faster than you and jump higher than you.  She won’t have to take medicine or wear braces on her ankles.  She won’t tire easily.  Her weak, sick body will be new.  A glorified body.  Freedom from pain and brokenness.  The hope we have in Christ is limitless.
    Let freedom ring.


  • Doors

    Originally published on June 21, 2013

    Almost every door in our house now has a reverse doorknob on it.  We have changed them – one at a time – as we have deemed necessary.  Once Shelby makes a huge mess in a room – a dozen or so times, we decide to take measures to keep her out of it.  The most recent string of destruction has involved water facets.  When she gets a few minutes alone, she likes to turn one on and splash and splash until she and the room she is in are soaked.  Not very fun for me or very safe for her.  So the latest lock to be reversed – the guest bathroom.  Now we can lock it from the outside.  She doesn’t know how to unlock it.  At least for now.  The one thing you can’t do if you come into my house, is lock the door when you use my restroom from the inside.  Sorry.  If privacy is a huge issue for you, you may want to empty your bladder before you come over.  We haven’t figured out a way to secure the kitchen sink yet, so we will just have to be as vigilant as we can.  And clean up a few wet messes when we do have to allow ourselves a few minutes to go to the bathroom or take a shower.  

    Sometimes I wish God would use something as concrete as a locked door to keep me from doing the things I shouldn’t do.  When I am tempted to say something rude or unloving, place a locked door around my mouth.  When the show I’m watching on TV turns raunchy, a locked door around my eyes would help me make the right decision.  When I’m emotionally eating and reaching for empty calories – and too many of them – a locked door around my lips would save me from guilt and regret.  When the urge to buy something I don’t need strikes, make my wallet impossible to open.  There are so many things I could do with our money that would glorify God instead of me.  But God gives us a free will.  He wants us to choose Him and choose His best for us of our own accord.  So he lets us make our own decisions.  I long to tell you that I make right ones more often than not, but I’m working that through every day.  And I’m so thankful that God doesn’t abandon us to our earthly desires.  He does send us the Holy Spirit to be a guide and help us.  1 Corinthians 10:13 says, “No temptation has overtake you but such as is common to man; and God is faithful, who will not allow you to be tempted beyond what you are able, but with the temptation will provide a way of escape also, so that you will be able to endure it.”  God will provide us a way to walk away from temptation, but he won’t make us take it.  And the verse doesn’t say He will offer it again and again.  We have to be listening for the voice of the Holy Spirit, watching for the escape route.  This takes practice and mindfulness.  In the same way, each time we have changed a door lock, there has been a time of adjustment for us.  It takes practice and mindfulness to remember to lock the door.  And while we work on it, we have to clean up a few more messes.  But the messes don’t mean our safeguards have failed.  They just mean we are imperfect, but in the process.  What safeguards do you need to put up in your “house”?