If you have watched Oprah in recent years, the title of this post probably sounds familiar to you. “What do you know for sure?” became one of Oprah’s favorite questions to ask her guests. I hesitate to say I am an Oprah fan, because I don’t always agree with her politics and religion, but I did enjoy her show. She got the best guests and got my attention with many thought-provoking topics. I did not watch every day, but I did try to record the shows that sounded interesting to watch when I was doing laundry or ironing or cooking. I got a little behind and I just now finished watching the last show. The hoopla of it all gave me alot to think about . The second and third-to-last episodes were an arena spectacle that was “all hail the queen” in grandeur. Only the biggest celebrities and best surprises to bid Oprah farewell. What gave me pause for thought was the over-the-top hero worship and adulation. During one segment, Stevie Wonder was singing “Isn’t She Lovely” to the tops in talk and the camera panned to a fan holding her hands up as if she was in church. Oprah often talked about her belief in God. She calls herself a Christian and claims Jesus as her savior (she spoke about this at length in the very last show – that can only be described as a sermon), but I know from other things that she has said and done that her brand of Christianity is very different from mine. Because of this, I feel compelled to tell you WHAT I KNOW FOR SURE.
The Last (I Promise) on Camp Spike N Wave
Originally published June 25, 2011
I don’t know if it’s possible to be on a camp high if you didn’t actually go to camp, but that’s how it always feels for me the week after Shelby gets back. I am so grateful for the break for Chuck and me, and so thankful for the wonderful staff and volunteers who ensure Shelby has such a great time. And it feels normal. “Normal” kids go to camp. There is so much she can’t do, but Camp Spike N Wave overcomes those obstacles. I know – I’ve seen the picture proof. Here is a list of things her sweet counselor sent me that Shelby got to do this year: She rode a zipline and a giant swing, competed in the talent show ( identifying animal sounds and singing “You are My Sunshine” in her own special way), rode a horse (assisted) that was sprinting and jumping over logs, caught 5 fish, and scored 3 points in kickball (that I’ve got to see)! If you know my Shelby, you are astounded with me at these things. Her counselor claims that she was the most popular and loved girl at camp and that her cabin mates sang her to sleep at night. You have no idea the balm that is for this mama’s soul, when I constantly worry how others might perceive her or that she could be made fun of. Most people wouldn’t aspire to “normal”. “Normal” might sound boring to some, but we will take as much of it as we can get. With Dravet Syndrome, we have to adjust to a constantly changing “normal”. This year Shelby has lost skills that she had the year before. Last year her sleeping patterns changed – for the worse. We are blessed right now to have pretty good seizure control, but we know that could change in an instant. So we celebrate and cling to “normal”, knowing that God gives enough grace and strength for us to adjust when that changes. But for now, we will ride on our camp “high” as long as it lasts, and send a huge “Thank You” from the bottom of our hearts to Katie Langley (counselor extraordinaire) and the staff and volunteers of the Epilepsy Foundation for making it all possible.


