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A Pause to Reflect

May 25, 2018 by Lauren 49 Comments

Photo by Jaletta

 

I’m taking a little pause (because a little one is all I have time for) in the midst of this last week of school to look back at where my girls have been and where they are going.

 

Shelby graduates in just 6 short days.  I wrote all about that and the festivities surrounding it here.  There’s something else that happened this week that I have’t talked about much, and is probably just as important to her future – if not more.  My husband and I went to court on Monday to secure guardianship of her.  Those of you in the special needs universe are probably somewhat acquainted with this process, but my friends with “typical” children usually have little idea what this is and why it’s even necessary.  Shelby turns 18 in July.  At that point in a person’s life, they should be able to see doctors, sign documents and make all manner of decisions without the hovering presence of a parent.  But not Shelby.  At developmentally 2 or 3 years of age, she remains fully dependent on her dad and me.  We felt it was necessary to, in essence, sue her to take her rights away.  We hired a lawyer, paid for a lawyer to represent her against us, endured home visits, filed extensive paperwork and gathered support for this case in order to protect her.  We were told that even with Shelby’s very limited capabilities, this ruling would not be a slam dunk.  The court, justifiably, doesn’t take away people’s rights lightly.  Without an official guardianship ruling, the chances are that any doctor, therapist or organization that currently knows us and works with her would continue to treat/help her.  But it might not be so easy once we have to transition to new “for adult” doctors for her or have to sign any legal documents pertaining to her care.  We personally didn’t want to leave anything about her well-being up to chance.

 

So we went to court.  In front of a scary, but fair judge in pursuit of official documents that would give us the right to make her decisions and sign for her.  It was granted smoothly and quickly.  God is so faithful.  After it was all over, our lawyer told us that she represented clients in a very similar situation just a week before and the hearing had lasted 4 hours.  And after that 4 hours, the judge simply took the case under advisement.  I’m glad the attorney waited to share that bit of intel.  I’m not sure how I would have handled being put through that ringer and going home with no real answers.  I’m so grateful our case was clean and straight forward – or as much so  as it could have been.  We got just what we needed.  And I waited until we got out of the courtroom, spoke with our attorney, rode the elevator down stairs and got all the way out of the building onto the street before bursting into tears.  And the tears flowed for 30 minutes.  We did the right thing, but it wasn’t an easy thing.  The lump I’m getting in my throat again right now reminds me of the gravity of it all.  I cried for the “grown up” that Shelby will never get to be.  I cried that we, or someday some else, will always make her decisions.  I cried for the college she will never go to, the independence she will never achieve, and the supervision she will always have.  I cried that she will never say “I do” or give birth to a child who would call me “Lolli”.  Of course, I knew ALL of these things before the court officially declared it.  But the hearing brought all of that grief to the surface.  So the healthy thing for me to do was cry.  And let myself cry as long as I needed to.  And then I thanked God for how very good He is – even in the hard things.

 

Allie is wrapping up what was, for me, the hardest year of my life (until 2017 which you can get an overview of here).  I cried through all of 7th grade as I tried to adjust to hormones and big feelings and being part child, part woman.  So many changes.  Allie seems to have fared it much better.  My youngest child is a straight A student with a beautiful singing voice who played 3 sports.  Mood swings aside, she’s pretty awesome, and beautiful to look at I might add.  And yet in this uber competitive environment we live in, she still gets so discouraged and feels like she doesn’t measure up.  My heart breaks to hear her express these insecurities.  But out of all the things she does well, there are two things this year that make me prouder than them all.  1.  Two of the coaches at her volleyball club have gone out of the way to tell me more than once that Allie has the best attitude and is so much fun to coach because if it.  That may seem like little consolation to her as friends with more private lessons or natural ability are afforded opportunities she is not.  She may not be the star, but a positive, encouraging attitude will take her much farther than her jump serve.  2.  As much as she loves her friends, her faith means even more.  She has chosen to be very involved in Students Standing Strong – a bible study club that meets before school – even though none of her friends wanted to go.  And she chose to be a part of a mission team preparing to go to Honduras this summer – even though none of her church friends were going.  I’m not sure I was mature enough at her age to go against the crowd.  And in both situations, she has formed new friendships with older kids not a part of her same grade circle.  Her willingness to put Jesus first makes her amazeballs in my book.  And my use of “amazeballs” makes me a dork, but whatevs.

 

That’s what I’ve been thinking about as school winds to a halt.  But it’s time to push “play” again on this momentous week.  We press on to finish the year strong.  Or hobble across the finish line.  Either way, we wrap up in just a few days.  In the words of that great theologian Madea, “Hallelujer”!

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Grad, Prom and all the Feelings

May 20, 2018 by Lauren 28 Comments

She’s a senior.  My daughter Shelby IS    A   SENIOR.  As the end of the school year races to a close, I’m trying to stay in my feelings.  My temptation is to stuff them down and barrel through this season, but I know this approach will only leave me with bigger, pent-up, frustrated feelings down the road.  So better for me to be open to the emotions as they come:  joy, sadness, pain, loss, frustration and happiness.  I vacillate between them all.  And probably a few I haven’t identified yet.

 

She’s a senior.  But for us, not much will change after graduation.  I was asked by the school to fill out this form for the awards ceremony:

 

These are just 3 of several questions that didn’t offer an answer remotely relating to my girl.  No where to even mark “not applicable”.  I closed the form in frustration.  Uncompleted.  Unsubmitted.  We won’t be going to the awards ceremony.  There is nothing there for us.  After our summer break, Shelby will go right back to high school to the transition program.  And while I am so very thankful for this option for her, it would be dishonest to say that I don’t grieve a “normal” future for her.  She will never go off to college, live on her own, marry or have children.  As we watch others prepare for these milestones, and as we anticipate our younger daughter doing the same in just a few years, grief comes anew.  Instead of questionnaires for awards ceremonies, I’m filling out forms like this:

so that we can have a current and accurate IQ test for Shelby as we go to court to be appointed her legal guardians at age 18.

While all of this future talk can be a little sad and a little sobering, there are still lots of senior activities to look forward to.  Like this:

 

 

Shelby got to go to prom.  Complete with friends, a corsage and a limo!  I am so very grateful to the Best Buddies organization and an especially sweet and loving group of kids who have a heart for the differently abled.  I believe I scared a poor 17 year old when I hugged her and shed way to many tears on her formal attire to thank her for including my girl.

 

On Monday, Shelby gets to do an elementary walk.  This tradition takes the seniors back to their first school in graduation gowns to walk the halls and see all their old teachers.  She gets to participate in Baccalaureate – a religious service for the graduates (having already been presented in our own church on Senior Recognition Sunday).  On the the last day of school, Chuck and I will get to join other parents and friends lining the halls of the high school to Clap Out the seniors as they exit the building for the last time.  Then she will help round out the Best Buddies team for field day!  And finally she will get to walk across the stage with the help of her teacher and favorite paraprofessional to receive her diploma with her classmates.  So much she does get to do.  So much fun!

 

So although I am allowing myself to feel whatever comes, today I feel grateful.  Today I am choosing to celebrate the “lasts” with this sweet baby – even if there are no exciting “firsts” to follow.  Today, I am hugging my daughter close and telling her how proud I am that she is made in the image of our incredible God.  And today, I thank Him for allowing me to mother such an incredible gift.  Today I praise God because Shelby is “fearfully and wonderfully made”.  (Psalm 139:14)

CONGRATULATIONS TO SHELBY AND THE CLASS OF 2018

 

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More on Friendship and True Community

May 11, 2018 by Lauren 22 Comments

 

A couple of weeks ago, I wrote wrote a post about my deep seated desire for authentic friendship and community.  You can find it here.  I don’t think I’ve written anything that has engendered this much discussion since this piece on special needs and the church.  The response I got begged for a follow-up.  Honestly, I almost didn’t publish the article because it seemed a little whiny.  A little too needy.  And who wants to be either of those things?  But I sat with it and prayed about it and decided that it was an authentic part of my experience and needed to be shared.  I was ill prepared for how great was the need.

 

I heard from women in my own community and across the country who feel isolated and crave intimate friendships.  Based on Instagram and Facebook, I bought the lie that everyone else has an active and fulfilling social life, so I must be a loser.  But this conversation has shown me that there are LOTS of losers out there!  Hmmm.  Maybe there is a better way to say that.  An unfulfilled desire for connection is much more common than I previously thought – especially among women around my age and stage of life.  I got responses like, “I thought it was just me.”  and “It stinks being the perpetual asker.”  Wow.  To be truly understood in the area felt like a breath of fresh air to me.  Almost like I created some community by writing about community!

 

For most women, friendships are soooooo important.  So it is also quite painful when things go awry.  I can tell you from my own personal experience that I had a relationship fall out several months ago that I consider the most painful thing I endured in 2017. And I had a cancer diagnosis, chemo and 4 surgeries!  You might think I am exaggerating to make a point, but I assure you I’m not.  I’m such a relational person that cutting out a friendship was much more traumatic than anything that happened to me in an operating room.  Loosing my breasts was just physical.  A severed relationship cuts to my very soul.  And the absence of significant, intimate friendships can feel as handicapping as a missing limb.

The absence of significant, intimate friendships can feel as handicapping as a missing limb.

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After giving this topic some more thought and reading what others have had to say, I have a couple of practical suggestions:

  1.  On busyness.  My number one relationship complaint has been that no one has time to offer.  And real friendships take time.  Not just shooting an occasional text and running into each other at church or kids sporting events, but genuine time.  To sit.  To talk.  To eat a meal together.  To come to the aid of someone in need.  This is a real problem.  Most of us need to find ways to give ourselves more margin for rest, relaxation and relationships.  Things that feed us and make us better to be around.  But the truth is that we all have responsibilities and commitments that must be fulfilled.  Most of us can’t lighten our loads over night.  This thought occurred to me as the previous article became a siren call for quality time and a few sweet individuals answered that call.  I now have invitations to lunches and coffees in May.  Otherwise known as “hell month” for anyone with kids in public school.  We have all the events and all the banquets and all the things.  So what do we do when we truly ARE busy?  How about instead of merely declining an invitation – we look at our calendars and find an alternative.  For example, “I have to drive my kiddos to events this evening, but I would love to see you and have Wednesday lunch free.  Would that work for you?”
  2. I stated in the last post that I was “fighting” for community.  That I wasn’t going to give up inviting and expanding my current group of friends in the hopes of growing fellowship.  And I do think it’s important for me to put myself out there to be open to possibilities.  But one wise friend reminded me that I should not neglect asking God for my heart’s desires – especially when the desires line up with his will for us.  And we know He wants us to be in fellowship with other believers.  In John 16:24, Jesus tells us, “ask and you will receive, so that your joy may be made full.”  In my Bible, those words are in red – straight from the mouth of the Man himself.  So while I think we should step out in obedience to any invitations or opportunities God is leading toward, I also need to step up my prayers in this area.  As one bloggy friend said, “Sometimes the best connections form unexpectedly.”

So here’s to good friends.  Tonight is kinda special.  Wait…that’s a beer commercial.  So here’s wishing you unexpected connections, God surprises and life-giving community.

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About Me

I love Jesus, my husband and caffeine. The order of these can change depending on how tired I am. When my two daughters, stepson, and 4 grandchildren get to be too much, I practice yoga. God graciously allows me to share our adventures, victories and flub-ups from my laptop. May He be glorified here.
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